This post is an introduction to the members of the School of Disability Studies Student Alumni Advisory Committee. You can find the latest meeting minutes on this site. To learn more about the committee contact Kim Collins at firstname.lastname@example.org
Kim Collins is the student engagement facilitator for the School of Disability Studies. She is an alumna of the program class of 2015.
Committee Vice Chair:
Greetings! My name is Carolyn Lee-Jones and I am a 2016 graduate of the Disability Studies program at Ryerson University. I first joined the Disability Studies Student Advisory and Alumni Committee (SAAC) while I was still a student in the program. After completing the DST course Strategies for Community Building I was looking for a way to increase my involvement and activism at Ryerson and becoming part of the SAAC was just the ticket. I am thrilled continue on with the SAAC, now as an alumni member.
Influenced by over a decade working front line in the disability sector my research interests include social justice, accessible learning and equity through social policy, Mad studies and the geographies of space and movement. When I am not engaged in research or working I keep a healthy balance in my life by pursuing my other passion; training for and running ½ marathons.
Members at Large:
Driven by passion to promote access to education for all, Marsha Ryan entered the program to explore how Disability Studies can enhance her knowledge and skills. On her academic path, Marsha immersed into a vast pool of theoretic and practical tools to further advocate for access. This resulted in her thesis project, in which Marsha described her journey of following (virtually and live) a charismatic Canadian disability rights advocate David Lepofsky, as she believes David will be one of the first to bring the Canadians with Disabilities Act. After her graduation, Marsha continues implementing educational strategies that would meet the needs of so many. She is proud to be a Disability Studies alumna and part of the SAC, as this is a way to bring change.
My name is Laura Mele. I am in my second year of Disability Studies and a member at large. I join the SAAC last January to become more involved in the school. I grew up in a small town called Point Edward in southwest Ontario. I have been involved with individuals with various disabilities for the past 23 years. If you want to gain experience you should considering joining the committee.
Ms. Pauline Wangari Mwangi is a passionate community leader. As a
Developmental Service worker with over 10 years experience, she stands
for more than simple approach to leadership, her goal is to inspire
unconventional thinking and transparency that delivers unparalleled
results in the area of developmental services, community housing,
women’s rights & mental health. Ms. Mwangi currently sits at Human Rights Committee Review board and Student Alumni Advisory Committee (SAAC).
Hi. My name is Hazel Williams and I am currently taking my second course in the Disabilities Studies degree program. I am really excited to be in this program and looking forward to expanding knowledge and continuing my work as an advocate.
Trevor Smith is a member at large who is in his second year of Disability Studies.
Lee Armstrong: Lee planned a degree in art history but found a more satisfying career path through a Developmental Service Worker diploma that led to Disability Studies. Working in a range of service settings “sparked the fire” in her to learn to think about disability in new ways which she has done through five semesters in our program. Based in an Ottawa hospital, her job in augmentative communication and writing services challenges her every day to apply classroom knowledge to advocacy for people’s right to a voice.
Naleni Jacob: Naleni immigrated to Canada in the 1990s with her two sons, one of whom is disabled, and has been the sole provider for them ever since. It is through experiences of parenting that she has come to Disability Studies, specifically through fighting for her son’s rights to education. She knows intimately the struggles that immigrants, in particular, face in attempting to achieve substantive inclusion, and has been heavily involved in parental outreach, and addressing issues of long-term care. She has become an activist mother.
Joanne McQuinn (not present due to debilitating back pain): A new student to Disability Studies, Joanne is “incredibly excited and proud to be part of such an amazing program”. She is employed as an Educational Assistant in a high school program for autistic students. In this context, she is an advocate for rights, justice and change in what is still called “special education.” Her goal is to work in post-secondary student accessibility services or helping disabled students transition to post-secondary studies.
Alisha Barfoot travelled from her home in Owen Sound to celebrate with us today. she has dedicated her academic and professional career to the practice of inclusive education. It is her passion — even if it means being unsettled in a job where disabled students are denied the meaningful learning experiences. A 2017 graduate of our program, Alisha’s final independent study painted portraits of inclusive education based on accounts of actual practice provided by inclusive educators.
Ryan Mcinally is filling the routine periods of unemployment that he experiences in his job with courses towards his Disability Studies degree – which he expects to complete by 2019. He works in an alternative classroom supporting at-risk youth, many of who have mental health labels. In our program, he is thinking about the contradictions of his own role, and using those reflections to develop strategies for improving the lives of students. This award supports Ryan’s educational aspirations, and his growing advocacy as an educator.
Ronnie Samarita: As a high school student, a co-op placement in an adult day program for labelled people sparked Ronnie into a Developmental Services Worker program and from there to Disability Studies. As an Educational Assistant, speaking up for students is a daily part of practice. Ronnie is grasping the complexities of the “support worker” role and looking to broaden his work into a range of age groups and school settings.
Nabella Siddique is of Pakistani origin but was born on the tiny Middle Eastern island of Bahrain where she perceives a powerful need for disability rights activism and the voices of disabled people. Taking up disability from a Canadian perspective has caused her to think about marginalization and discrimination as a global issue. As a teaching assistant with the Peel school board, she can feel the impact of Disability Studies in the way she deals with her students. As the twin sister of a disabled woman, she has a personal stake in inclusive education, human dignity and peace.
Megan Suggitt (unable to attend) is a first year student in our program who reports that she is already perceiving the world around her in ways that are more culturally alert – whether it is to Indigeneous people in Canada, the Hearing Voices movement or students with learning disabilities in educational settings around the world. Her studies with us and with Child and Youth care inspired her to start a non-profit business which offers support services to disadvantaged youth.
Sophia Owenya is a teacher and educational assistant from Windsor Essex who has spent more than 20 years providing support to children and adults with intellectual disabilities. Involved with charity organizations locally and internationally, she has done volunteer work in Rwanda and Tanzania. She is passionate about Disability Studies and determined to complete the program on schedule. This award upholds her hopes.
Nicole Cadwallader: In her application, Nicole tells us that Disability Studies has shaken her world. She started this program with zero knowledge about disability as social and political – but after three years, she is critically examining the world through potent new theoretical lenses. She works in the educational sector where disabled children and their families are still fighting for their rights. She knows what it is like to question the programs and systems that employ her but this program has given her tools to analyze how those systemic issues are being created. This award supports Nicole’s refusal to accept educational gaps as “normal” – and her pursuit of purposeful education for disabled students.
Melissa Rideout: For the past four years, Melissa has worked as a Teaching Assistant for the Peel District School Board. She came to Disability Studies to increase her knowledge and become a better advocate, to know how to speak back to demeaning comments in the face of the powers that teachers wield in classrooms. As her course work deepens, she reports that she is “gaining backbone”, getting fueled up to be the advocate she wants to be. She has learned that being a disability advocate means you are an advocate for every race, class and gender. She writes: “The job I may get after this program is not as important as the knowledge I foster and the leader I become.”
Francis Pineda: From first-hand experience as a racialized student, Francis can testify to the barriers that students face in completing post-secondary education – starting with high tuition fees. For several years he has been active in student politics and marked his third term with the Continuing Education Students’ of Ryerson by being elected its president. Through a range of collective projects, he tries to center marginalized voices such as those of disabled students. In Disability Studies, Francis finds support for deconstructing, challenging and unpacking the dominant system. His engagement in this program is shifting the pathway he will take after graduation.
Darlene Murrain: Darlene has always wanted to be involved in community organizing for the inclusion of disabled people. Her final independent study was about placing disabled people in the anti-black racism movement. But Darlene’s big aha! moment was learning about Inclusive Design from Charles Silverman in DST 614. “That was it”, she writes, “I had found my calling!” Now, as a graduate, she feels that she has tangible ways to apply her learnings. Her aspiration is to follow her passion by pursuing graduate studies in the field of Universal Design and education.
After a decade in the sector, Meghan Hogg is grounded in a feminist social justice approach to counselling and support in response to violence against women. In 2009-10, for Nellie’s Shelter, she co-researched and wrote a position paper on the intersections of trauma and violence, picking up on the ways that women’s voices and experiences are pathologised through systemic medicalized responses to trauma. In conference presentations and training workshops she draws upon the work of Mad activists/scholars, and describes the conversations that ensue as “sticky, profound, emotional, illuminating and deeply relevant” for professional practice.
Marsha Ryan: Originally from Moldova, Marsha brings to Disability Studies a political consciousness drawn from the confluence of Romanian, Ukrainian and Russian identities, languages and cultures. In Canada, Disability Studies has become her second home – a place where she encounters people who demonstrate leadership around injustice in a complex world. Last year, for her final independent study, Marsha spent most of the winter shadowing AODA activist David Lepofsky in his relentless pursuit of a provincial Educational Accessibility Standard. Using visual mapping, word walls and Twitter analytics, she teased out the ways that he builds community, shapes and disseminates ideas towards a more inclusive society.
KATHRYN: Disability Studies has an active Student Advisory Committee working with Kim Collins, our Student Engagement Facilitator to demonstrate community engagement strategies for/amongst part-time learners at a distance. This year, the committee wishes to recognize Paris Master-McRae for her powerful contribution to their work and the life of the School. Marsha Ryan will speak for the committee.
MARSHA: Paris Master-McRae is the gold standard when it comes to the School of Disability Studies. She knows the system from within. She knows it both as the Student Affairs Coordinator and as a program student, now Graduate and Alumni, Class of 2015. She is also an award winner, the recipient of the Malcolm Jeffreys Leadership Award. To Paris, “disability studies is not just a job or a program it is a community, a family.” She is a change-maker and a tireless advocate for values of the school, faculty and university. Guided by the Disability Studies motto “Vision. Passion. Action” her day-to-day work propels the work of equity, inclusion, and diversity. She will do whatever it takes and more to support staff, faculty and students, to offer encouragement and to explore new ideas. Paris’s welcoming smile, infectious laughter and open door create an environment that cultivates collegiality, camaraderie and solidarity in seeking disability justice.
Rukiyah Ghani: Rukiyah is a first generation post-secondary student whose experiences reflect the challenges and joys of both immigration and disability. Close in age, Rukiyah and her brother navigate their community together, as he faces both discrimination and institutionalization. Much of her knowledge and skill in disability advocacy is gained from this lived experience. An accomplished student, she makes powerful links between the classroom, community and professional practice. Described as “exceptional” by her instructors, she is serving as a member of School Council where we benefited from her gentle intelligence.
Laura Mele: Laura’s application came in with two shining letters of reference: one from the mother of a young woman who is designated Medically Fragile and with whom Laura has worked for 18 years. The other came from Dr. Chelsea Jones, an instructor in our program who writes that “Laura’s work revolves around the task of improving the lives of others – from small gestures to large strides in various fields of study.” A resident of Sarnia, Laura identifies as a disabled rural woman, and often pulls the geographic peripheries into class discussion. She is making her mark through participation on the Student Advisory Committee and relationship-building in its many projects.
DAVID: In its attempts to “change the conversation” around mental health, Disability Studies at Ryerson links social movement issues and actions with the fresh scholarship of Mad Studies. To mark my 70th birthday, some friends paid the tuition fees for someone to take Mad People’s History – the course that I helped to create and taught here for many years. That gesture has become a yearly ritual as has the involvement of Working for Change, the community organization from which the recipient is selected and where I am pleased to be a member of the board.
We regret to tell you that last year’s recipient, Adrienne Mageenis, passed away this year. Adrienne was a graduate of the Women Speak Out Leadership Training course at Working for Change and a passionate advocate on issues related to mental health. She participated on numerous committees and Boards of Directors for non-profit mental health agencies. She was very committed to furthering her education in the field of mental health. Our community misses her strong voice, perspectives and wisdom.
This year’s recipient is Desiree Bowen. Desiree is a graduate of En Route to Employment and is now working as a Program Assistant at the Centre for Addictions and Mental Health CAMH. She has a keen interest in Peer Work. Mad People’s History will provide her with a strong background and understanding of the history of the survivor movement.
Erin Poudrier: Erin graduated this Spring. In reflecting on her time in the program, she is most proud of her development as an academic writer. Her application included course papers on cultural representation, and bioethics, as well as her final independent study titled Precarious Terrain: Narratives of American Sign Language Interpreters. She explained that her disability consciousness “did not happen overnight. Rather it was a journey through reading and writing about learning” with feedback from professors that overcame her skepticism and uncertainty. Erin had the pleasure to get to know Helen in the summer of 2014 when they both took the community building course.” I am thrilled to accept”, she wrote. “I feel truly honored to receive this award in Helen’s name.”
Maria Teresa Larrain: A mature student in our program, Maria Teresa is a Chilean Canadian film-maker and community organizer. She has just released Shadow Girl, a film that follows her journey into blindness and her encounter with a group of blind Chilean street vendors from whom she learns a different way to look and to see. Maria spent several years making this film – some of it shot on the Ryerson campus during one of our summer institutes – and much of the past year in its international promotion. The film has been recognized by the Circle of Chilean Art Critics (Best Documentary), DIVA Film Festival (Best Film, Best Director, Best Sound), FEDOCHI Film Festival (Best National Documentary), DocsBarcelona Valparaiso Festival (Best National Film Audience Award), FIDOCS Film Festival (Audience Award) and the Vogyakarta Film Festival (Special Jury Award). We are so pleased in Emma’s memory to recognize Maria Teresa and to support her ongoing work.
Jerusalem Bete: A recent graduate of the Developmental Service Worker program at Centennial College, Jerusalem is looking to increase her knowledge and her impact as a worker. Member of a family who migrated from Ethiopia, she and a brother who is autistic grew up in the diverse Toronto neighborhood of Flemingdon Park. She knows the many challenges that racialized disabled people face in life. With educational challenges herself, she is keen to expand her capacities to support others.
Hedy Ng (not present): Resident of Markham, Ontario, Hedy works as an Adult Education Literacy Program Assistant. Unable to complete her early studies, she is now a single parent raising a son who has been diagnosed with ASD. She regained her educational pathway by taking any seminars or class she could find. Her path to our program began with the Accessibility Practices Certificate which, after seven courses, she used as a platform for launching into program admission. Great stamina, Hedy.
John Okot: Following his completion of the Developmental Service Worker diploma at Fanshawe College in London, John comes to us with a strong desire for further education and a broader range of job opportunities. Prior to returning to school in 2013, he drove transport truck for almost eight years – which was a living but one that did not allow him to make the kind of difference he wants to in other people’s lives. One of his long-term goals is to use the skills he develops to educate young people in his country of origin, South Sudan, Africa.
Ann Beatty: With connections to disability in her personal life and her job as a support worker, Ann enjoys learning new theoretical frameworks, risking challenging topics, connecting her coursework with her personal life and generally thinking through the complexities of how disability is understood in society. Since 2005 when she started the program, she has completed nearly all of the DST courses and is poised to begin her final independent study towards degree completion in April 2018. Having faced challenges as a working student, this award will provide very meaningful assistance to her in completing her studies.
Christina Devlin: Christina started her Disability Studies program in 2014 as a self-advocate who was running a support group for Autism Ontario (London chapter). Being a co-researcher on Esther’s parenting possibilities research introduced her to Disability Studies and this program has given her greater confidence as an autistic person living in a neurotypical-dominated society. Christina draws direct connections between course materials, assignments and her growing activism including leadership with a grassroots, intersectional, user-led, peer support and advocacy organization that is run collectively by autistic people. She is headed into Research Methods this fall, pressing towards degree completion and savoring a dream to work for the Ontario Human Rights Commission.
Adriano Aguiar – Life measured in feet: An arts-informed inquiry
Linh Chau – Illness and disability in the workplace: Living the organizational experience
Nadia Lembo – Disability as a story that connects us: Exploring the impact of narrative moments
Karine Roy – (not present ) Critical Discourse Analysis of InVitro Fertilization (IVF): “Your embryos are not grade A”!
Brittany Van Beilen – ABLLS-R Activated: The invisible connections within ABA: An institutional ethnography
This post was written by graduating student, Darlene Murrain.
From the beginning of my scholastic career in Disability Studies, I always looked forward to the Major Research Thesis Project. As I navigated through the core courses of the program, I became more and more intrigued with various schools of thought around inclusion, intersectionality and activism. I knew that I wanted to carry these themes into my final project. Choosing a topic for my final project was a daunting process but thanks to my supervising professor Esther Ignagni, she helped me narrow down my topic in a way that brilliantly captured all of my interests: Placing people with disabilities in the movement against anti-black racism movement using a Disability Justice lens. The aim was to look at various local activist organizations (e.g. Black Lives Matter Toronto) whose missions seek social justice for black people and to determine how disability is addressed in their organizing efforts. With approximately 60-80% of state violence victims being black people with disabilities, I felt committed. So my research question became: “How is disability taken up within the movement? This meant to explore representation, ableist assumptions about disability embodiment, the vulnerability of differing bodies without perpetuating that vulnerability, internalized attitudes of ableism within the black community, inclusive spaces, and creating alternate ways for people with disabilities who cannot take to the streets. During the research process, I had to be intentional about not criticizing or assessing the efforts of the community organizations to determine if they were successful. I just simply wanted to see how it was done.
The research methodologies I used were Ethnography and Discourse analysis. It was impossible not to place myself in the research as I am a black woman and there were moments when I experienced a wide range of emotions, especially when reading newspaper articles about state violence and discrimination against black people. I used these moments to interact with the material from a personal perspective as well as a researcher’s perspective. Ethnography permitted me this opportunity since it’s a research method that respects the research’s subjectivity and does not make the assumption that the researcher is separate from the research. Discourse analysis helped to complement Ethnography through exploration of discriminatory language and social concepts, which I did by locating our cultural understanding of the word “normal”.
I used many sources to collect information. I collected data not only from scholarly articles and informational interviews but I also read blogs, followed social media accounts, visited visual art exhibitions during Black History Month and attended community speaking engagements. Looking back, I believe I was quite over zealous because the amount of information I accumulated became really overwhelming at one point. However, I recognize that I did this because I had so little in terms of scholarly research explicitly on disability inclusion in the modern movement against anti-black racism. I really had to process and organize the data in a way that made sense to my research. I accomplished this by focusing on the shared experiences of black people and people with disabilities. Three concepts that stood out to me in this area that I would like to share are Consciousness, The Weather and Internalized Racism/Ablesim. They are defined below: Consciousness: This is idea of a social movement group and it’s members adjusting its way of organizing or its “conscious” to address the changing ways of systemic oppression. An example of this would be taking up an intersectional approach to black issues that include various identities, because not every one who identifies as black faces the oppression in the same ways.
The Weather: This is a concept shared by Canadian Poet and Documentarian Dionne Brand who has written about racism and state violence in Canada. She describes racism against black people as “the weather”. It is anti-blackness rooted in white supremacy and it is accompanied by the glance and the stare. She says just like the weather, racism is constant, casual and happens every day.
Internalized Racism/Ableism: This is when the individual feels inward hatred and inadequacy because of how society discriminates against them based on their identity. Also media representations can have a negative effect on the individual’s perception of self and contribute to their feelings of internal discrimination.
So back to my burning research question: Is disability taken up in the movement against anti-black racism? Absolutely! How is disability taken up? For the sake of this post, I will not go into extensive detail but from the articles I read, the organizations that I interviewed and the events and art exhibits I attended, serious considerations are made for black people with disabilities, whether visible or invisible, to participate fully in the movement. This can be anywhere from the frontlines to leadership roles to social media engagement to adding disability-related issues to the agenda. My analysis revealed that in order for the movement to be successful on a political front, the organizers had to consider the intersectionality of the multiple identities that claim blackness within the movement itself. Space is the top consideration when inviting people with disabilities into the movement, making sure it is accessible, inclusive and safe.
Black Lives Matter Toronto advocating for queer-disability rights is an example of the intersectional shift of consciousness to bring to the forefront the issues that affect everyone, not just people of colour. At the 2016 Pride parade, BLM-TO halted the parade to present a list of 9 demands to the head of the parade. Although the backlash from the media focused heavily on BLM-TO requesting the removal of police floats, what they failed to acknowledge were that 2 of the demands were requesting improved accessibility for queer people with disabilities and hearing impairments, which is awesome!
To conclude, I believe that the modern movement against anti-black racism has done a great job of being a intersectional model of inclusive and safe spaces as well as a platform for black people with disabilities.
I want to end with a quote from Feminist and Civil Right Activist Audre Lorde that says: It is learning how to stand alone, unpopular and sometimes reviled, and how to make common cause with those other identified as outside the structures, in order to define and seek a world in which we can all flourish. It is learning how to take our differences and make the strengths. For the master’s tools will never dismantle the master’s house.
This post was written by Disability Studies alumna, Katherine Ridolfo.
Though I have a long and dedicated history of working with people who have a developmental disability, I felt that I needed more post-graduate education to continue to pursue my career path, personal goals and dedication to the field. My role has largely been as a Family Support Worker and I felt that coupled with the Disability Studies and Master’s degree in Social Work would be a good fit.
For me, as a single parent, the challenge was in finding a program that would allow me to continue to work full time and pursue an education that considered my current educational background. The MSW for Working Professionals, offered through the University of Windsor was a perfect fit! The education was delivered locally (for me-Mississauga, but I understand that it is also offered in Oshawa) every other weekend starting with Friday afternoons at 3 pm to 8 pm and then all day Saturdays from 8 am to 4 pm. It was not necessary to have a BA in Social Work, however, this meant that I was making a 32 month commitment of not having a life beyond the program!
The program is generalized and is not specific to any particular counselling modalities (my understanding is that this is more the norm, all programs have taken on a broader approach) and is very fast moving. A new module is covered approximately every six weeks. The curriculum consists of lots of reading, and a combination of essays, group presentations and tests. There are two field placements consisting of 450 hours. It is difficult (and discouraged) to work throughout this time. There is also a final capstone/research project at the end of the program. In addition to the cost of books, be prepared to do lots of additional photocopying of required and recommended reading. The approximate cost of this program is about $30,000 with books in. Thankfully, the whole amount does not need to be paid upfront! (A word of caution is warranted at this point…students who pursue this avenue and are expecting to get an entry scholarship (based on a high GPA) are NOT entitled-however, the students on campus taking the same program are. I tried to advocate for the same rights but was not successful. Perhaps a fellow Ryerson alumni who pursues this avenue can take up the good fight).
Once admitted, you will complete your journey with the same cohort-which is a bonus. Through these bonds I have managed to forge incredible ongoing relationships and connections. My cohort retains a FB page as well as communicates routinely through Messenger-so that we all know what is going on with our graduating class at all times.
Currently, I continue to work at a local Community Living agency, teach part time at Humber College in the CICE program (Community Integration through Co-operative Education)-which is a unique two year college experience program for young adults who have a developmental disability. It is a passion of mine and I am hoping for full time employment in the near future. I am also beginning to build a private practice as a social worker and am hoping to build a niche for working with families who have a child with a developmental disability as well as for individuals who are cognitively capable of participating and benefiting from counselling. I have a long standing vested interest in End of Life Care for people who have a disability, specifically-developmental, and as such I am also actively pursuing a PhD program though I am not sure if I’d like it to be in Social Work or Disability Studies at this time.
And… on a final note-Kathryn Church, writes phenomenal letters of support!
This post was written by Melanie Panitch. She is a former director of the School of Disability Studies and is currently holds the John C. Eaton Chair in Social Innovation and Entrepreneurship.
Ten years ago, in 2007, while Director of DST, I signed an affidavit in a Charter Challenge (under Section 15 and the Equality clause of the Charter of Rights and Freedoms). See Carol Goar article from the Toronto Star.
The case itself addressed the differential and discriminatory impact of the Canada Student Loan Program, which we know as OSAP (Ontario Student Assistance Program ) on students with disabilities. The argument went as follows: Disabled students take longer to complete degrees, hence incur more debt than non-disabled students to get the same degree. This serves as a deterrent to disabled students from attending post-secondary education worried by a high debt load and how to pay it off afterwards given the uncertainty of finding work, yet, without degrees are in a further disadvantageous position in the job markets.
The wheels of justice are slow, and two weeks ago I was advised by the applicant’s lawyer, I would be cross-examined on my affidavit. In preparing for this cross examination which involved updating my knowledge about loans and grants – I found our many revealing things in support of the discriminatory impact of OSAP on disabled students. Alas I was not given the opportunity to “make the speech” I wanted at the hearing itself, but I can share in this blog some of what I learned.
The first big decision is whether to disclose disability. Registering with the student accommodation and support office and if eligible for OSAP (even for only $1.00) taps into some non repayable grants: Bursary program for up to $10,000 for learning supports (eg computer, accessible technology). Is it high enough for account for the wide range of supports required to succeed? There is also an annual $2000 grant for students identified with a permanent disability.
40% course load counts as Full Time status. But FT status at the University doesn’t translate to FT status for example Awards or bursaries that assist financially nor does it have the same meaning with ODSP which can be confusing. A 40% load also means less funding. There can be long wait times before the loans are approved, often held up until the required assessments arrive, and given wait time for appointments students may end up having to pay out of pocket for eg, first or last months’ rent, course materials etc.
Managing OSAP can be like having a full time career because there is a need for constant reporting. If you change a course load, add a course, withdraw from a course, do badly in a course, need some time away for eg episodic disability, OSAP monitors closely and adds or subtracts payment. A low grade in a course that indicates a lack of progress or success according to OSAP triggers a requirement for a letter and explanation. If that happens twice, you can’t take any more courses until you repay. Condensed courses, intensive courses are also confusing for OSAP. Lack of flexibility – a disability keystone – is an issue. Having to think about reporting at a time when health or disability related concerns are predominant is tricky to say the least yet missing the deadlines has an impact on loans and interest on loans.
There is an assumption of disability as monolithic – that disability is stable and physical and visible.
Students with disabilities who are not on OSAP are not eligible for work-study programs thus denying opportunities for acquiring work-related skills and experience to boost resumes.
A positive step has been instituted by charging tuition by course rather than by semester. However for student with disabilities taking more years to finish their studies means extra costs in a number of ways: budgeting for accommodation, travel and food over a longer period, a delayed period before entering the work force; some student ancillary fees are pro-rated though others continue to be charged.
Perhaps this can be the start of a conversation on how the impact of the student loan program has affected students and their studies. It is worth noting that the Ontario government intends to roll out a new financial aid program. A recent Globe and Mail article (Nov 29, 2016) reported it was redesigning the current system to “scrap a complicated package of grants and loans and tax credits and replace it with a singled program, the Ontario Student Grant…” Stay alert!
This post was written by recent graduate, Carolyn Lee-Jones.
I always find the hardest part of any task is the beginning. Taking that awkward first step or action needed to propel me forward always brings with it a terrifying sense of anxiety. Today, I am here to talk about presenting my DST 99 project, Walking with Strangers:Mapping experiences of madness and space, to diverse audiences. But at the moment all I see is a sea of unfamiliar faces, strangers really. I close my eyes, take a deep breath and start walking…
Walking with Strangersemerged to make sense of a troubling situation involving someone I had been in a care relationship with experienced escalating mental health crises. The degree of stigma, lack of accommodations and responses to her distress was appalling. Witnessing these events led me to reflect on my own experiences of distress and struggles with a Mad identity. Guided by a Mad Studies framework, Walking with Stranger is an ethnographic study exploring how Mad People experience and negotiate social and geographical spaces in everyday life. Or more simply, discovering how Mad People are living in space. My research involved working with four Mad identified participants. Each produced 24-hour narrative diaries focussing on ‘thick description’ and participated in semi formal interviews. Most importantly to my research, I also went on go ‘go alongs’ where I actually walked with participants as they went about their regular routines and locales to get a sense of how they interact with their environments.
When I initially developed Walking with Strangers I didn’t give much thought about how I might have to alter my project to reach audiences from different backgrounds. Most recently I was challenged with taking the presentation I prepared for the Canadian Disability Studies Association (CDSA 2016) conference and turning it into something I could co-present with Dr. Kathryn Church to a Media Production class at Ryerson. Being immersed in Disability Studies, I had forgotten how foreign the concepts had been when I was first introduced to them. Presenting to the Media Production students, mental health as illness and the more common medical, recovery based models- these were familiar to the students. Mad as an identity and pride, never mind an entire field of study was far more difficult to grasp. Nevertheless, I did my best to present the bare bones of my project and its relationship to Mad Studies. By focusing on how I enacted ethnography in my project and what ethnographic research looked like on the ground level, I wanted to emphasise how ethnography is about living engagement. It’s awkwardness as well as connection and everything else in between still counts as data.
Based on the Q & A session which followed my presentation, the response to my project seemed mostly positive. The students had interesting questions about Disability and Mad Studies, finding participants and challenges working with mad participants. Some of the students shared discomfort with this kind of research which seemed only natural. I had similar reservations at first but I found that doing ethnography included my learning to face my discomfort and accept that ethnography is not necessarily a linear approach to research. Through ethnographic research I found that having to adjust, adjust, adjust was just all part of the process. In doing so, ethnography showed me alternative way of knowing and seeing the world by immersing myself in my participant’s experiences of their everyday spatiality’s. By presenting to the students I could show them that mad people can be researchers as well as participants. Maybe, even changing some of the student’s previous notions about madness. As a Mad researcher, I feel I was in a unique position both personally and academically to work from the inside out to explore complicated questions about everyday spatiality’s, madness and geography. My work was about people living in space and presenting to the Media Production students gave me another opportunity to show the other, every day side of madness. Reflecting, learning to present across diverse groups, I better understand the importance of being able to make my work accessible and share it with wider audiences to change how people think about mad people and experiences. Thanks for walking with me!
This post was written by Associate Professor, Eliza Chandler.
Beginning in January, Dr. Carla Rice and myself will be co-directing a seven year SSHRC-funded Partnership Grant called Bodies in Translation: Activist Art, Technology, and Access to Life. Activist art, as it is defined in this grant, is Deaf, disability, and Mad art, fat art, art made by aging/aged people, and Indigenous art produced by Ontario-based artists. This grant will animate the assertion that when non-normative artists have access to creating and exhibiting art, and when we all have access to publically engaging with it, that differently embodied and marginalized people achieve greater possibilities for living a fulfilled life and expanded recognition of having liveable futures. And in a culture in which D/deaf people, disabled people, Mad people, fat/differently-sized people, aging/aged people, and Indigenous people are recognized as living unliveable and undesirable lives, we recognize that the project of claiming vitality through activist art is nothing short of urgent.
Bodies in Translation brings together 40 university and community-based partners from across Canada and the UK. Tangled Art + Disability, the main community partner, will be the site of much of the grant’s artistic activity. We aim to help cultivate activist art and mobilize its social justice capacity through five research streams which will: 1) Create an open-access, accessible, and ever-expanding archive of activist art in Ontario; 2) Innovate new ways for technology to help create, exhibit, archive and experience art; 3) Facilitate the creation and exhibition of activist art; 4) Consider how activist art contributes to social justice by promoting new understandings of embodied differences, both through art and as artists; and 5) Develop free and accessible secondary and post-secondary curriculum around activist art which can be used within equity and social justice pedagogy.
The main research outputs of this grant will be an activist art archive co-hosted by the Canadian Journal of Disability Studies; the development of a standard and policy for making the arts accessible; activist art programming, performances, and exhibitions; symposiums, conferences, workshops, and publications about activist art; and a web-based knowledge platform wherein educators can freely access curriculum and curriculum development tools for teaching about social justice through activist art.
What this means for the Ryerson community:
As one of the two main university partners on this grant, the School of Disability Studies will be abuzz with research and artistic activity for the next seven years. The School will host many research symposiums— the first of which, the Aging/Disability Symposium will be held February 16th and 17th, 2017 and stay tuned for the second Cripping the Arts symposium happening in 2018. The School will also be the site of the grants Access the Arts Lab, a lab complete with 3D printers, iPads, video editing software, and new technology as it gets developed over the life of the grant that will help make art-making more accessible. This lab is free to use for students, artists, and community members, so feel free to pop by when the lab is set up next winter. The grant will also create a number of research assistantship positions for students, artists, and community members. If you are interested in one of these positions, please get in touch with me.
If you want to hear more about this grant or would like to get involved, please get in touch with me at any time: email@example.com, 416-979-5000 ext. 6200, office #523.
Looking forward to an exciting next seven years cultivating activist art at the School of Disability Studies!
This post is written by Kevin Jackson. Graduate of the School of Disability Studies at Ryerson and now graduate of the Masters of Arts in Critical Disability Studies program at York University.
As a recent graduate of York University’s Critical Disability Studies (CDiS) master’s degree program (part-time), I wondered about how I should sum up all of my experiences in such a short space. Well, the first point that needs to be expressed is that I am a DST graduate (2014), and this is specifically written for Ryerson DST future/present graduates. As this piece will demonstrate, being a Ryerson DST grad gives CDiS MA students a tremendous advantage in the CDiS MA program.
My story would have to begin on orientation day. I was terrified. We all met in our dedicated Vari Hall classroom where I met my fellow MA/PhD students. We introduced ourselves and discussed the program. Thankfully Dr. nancy halifax was familiar with me from an edited collection to which we were both contributing. She was friendly and openly acknowledged my work. I felt this was a good way to start my MA! However, as I was delighted to discover, this was just the beginning of many outstanding experiences I would have in CDiS program.
The next thing to tackle were the actual classes. I recall the first few weeks of the mandatory disability studies overview class/tutorial with Dr. Geoffrey Reaume. I was overjoyed to learn that I was not only familiar with the themes, but that I had already read many of the assigned readings back in my DST undergrad! Although I did all of the readings again, I made sure to make notes that would allow me to make a few comments per class, which as anyone who knows can testify is a challenge for me. But with such small classes, great professors, and already being familiar with the themes/readings, I found class participation to be very manageable. In fact, I found my overall grades actually rose higher than my undergrad! Let me repeat that for DST students who might be worried about their capability to do the MA coursework: Yes, I actually received better grades in my MA than my BA. This was due to several factors—including the fact that I was academically supported (great profs), was dedicated to my academics (did all of the readings, research, and assignments), and that I was free to do my coursework. This last point cannot be overstated. One needs to consider their personal situation to determine if their job, social life, and even family can manage the amount of work that an MA requires. Certainly, doing the MA part-time could reduce the workload, but there are disadvantages to this as well. In all cases, there is a generous amount of work that you will be required to do to continue in the program (no less than a B for any course).
While CDiS is very good with accommodating disability and Madness, taking time off from the program is problematic. York University (but not CDiS itself) has a policy know as “continuous registration,” where once a student is enrolled, they cannot take time off from the program without financial penalty. That is to say, even if you have an accommodation (or even a MD’s letter) and you require time off, you will be charged for taking time off from the program. This red tape and bureaucracy were the most negative part of my grad school experience, but professors mitigate this issue by giving assignment extensions whenever possible.
I have tried to make this piece as helpful as possible to potential CDiS MA applicants; however, my experience will not be everyone’s experience. Being in the CDiS grad school has taught me that hard work, flexibility, and self reliance is so important, and the rewards far outweigh the negatives. I have met some of the most wonderful Mad and disabled people while doing my MA with CDiS, and these close relationships have stayed with me. My graduating class ceremony on October 19th, 2016 was a milestone in my academic, activist, and personal life. This experience has changed me, and I feel my own research has somehow changed Disability Studies and Mad Studies, hopefully for the better. You too can complete an MA in CDiS. As a Ryerson DST graduate, you already have a head start in the program (Kathryn Church has well prepared us for this). I myself can attest to the fear of beginning graduate school (MA), but if I can do it, you can do it—and make your own mark upon the world you are helping to create.
This post was written by current student Robin Kellner.
Almost daily, my clients and I are stopped by curiouspasser-by’s who have numerous questions and who feel entitled to our personal information.
I understand that we stand out. It’s not common to see two people side by side, one telling the other about every visual and auditory stimulus in the mall, doctor’s office, or restaurant. But that is how some people who are deafblind live their lives, with someone travelling beside them providing access to everything there is to see and hear in the environment around them.
Most commonly, I am asked if my client is my parent.
A few weeks ago, my client was getting her banking done when the teller stops to ask “Are you her daughter?” When I passed the question along to my client, she snapped “No! She’s an intervenor.”
We both sighed as we left the bank, “It’s annoying. I’m not old enough to be your mother.” It’s true, not even by a long shot.
Curiosity is human nature, but I often wonder, if disability were to be removed from the situation, would people still feel inclined to ask such questions? I would never pull up a chair at a café and ask the two people sitting at the table how they know each other. By Torontonian standards, that would be socially inappropriate – not to mention that I do not give a crap how they know each other.
It may not sound horrible to be approached with questions, but could you imagine if it happened almost every day? Such inquiries rarely turn into thoughtful conversations promote awareness of deafblindness – they are flat out insulting.
The interview does not often end with me being asked if I am my client’s offspring. Again and again, we hear “Can she see?” or “What’s wrong with him?”
These quandaries are also always directed at me implying that the person views my client as invisible and unable to answer a question.
I am not advocating for a society of people who never talk to one another and ask each other questions, but I encourage people to think about their questions before asking them. Speak to the person you are curious about directly, regardless of their mode of communication, language, vision, or hearing, and ask yourself: Why am I asking the question? Without the presence of visible disability, would I still feel the need to ask the question at all?
On a recent shift at the dentist, the receptionist asked if my client was my father. When I relayed the answer along to my client – who took the time to explain the role of an intervenor – the response was: “so like your daughter.”
We were speechless – but offered polite chuckles as we walked out using sighted guide. Having never been in that situation with this particular person, once we got outside, I asked him how he felt about the question. His response gave me a new perspective to the scenario – he said that he should have asked the receptionist if the dentist was her mother.
It occurred to me that such questions are not only disrespectful to the person with the embodied difference; they are also patronizing to the intervenor and diminish our roles as professionals.
The receptionist at the dental office is a skilled professional who plays an essential role in managing the office and ensuring the quality of the patients’ experience. Intervenors are trained professionals who provide visual and auditory information to people who are deafblind, and are trained in various modes of communication, orientation and mobility, and much more. Sure, it could happen that a dentist could hire their child to work in their office, and a family member could be put in the position of intervenor if there is a need. But would you ever feel the need to ask the receptionist at a dental office how they are related to their employer? I would guess the answer to that question is likely no.
Why then, do people feel it is their right to ask me how I am related to the person beside me who is holding my arm, a white cane, or the harness of a guide dog? Is it because they are perceived to have a disability?
In reality, I could be their daughter, cousin, or I could even be their lover – but is it really any of your business?
Playgrounds provide opportunities for children to play in a diverse, safe environment along with allowing them to grow to create and pretend while interacting with their peers. Playgrounds are meant to provide children an exciting, diverse environment to play. Authors; Yantz, Young, & Mckeever (2010) maintain “by providing children the opportunity to play together is an important step in redressing discrimination, marginalization, and exclusion, inclusive play spaces help to promote and create an inclusive community” (pg.76). The purpose and goal of my community project are to create an accessible play environment that meets the needs both of the children disabilities who attend the school and everyone within the community. My paper focused my narrative, of my journeys as I worked on two projects one being changing the existing playground in making it accessible to everyone within the community. The second project is participating and working with school committees and stakeholders in designing and creating an accessible outdoor play space in the school’s courtyard. My motivation: As an Educational Assistant I am required to supervise the students I support outside during their morning, lunch and afternoon recesses. However during this time, I often see the students isolated playing on their devices because there is no equipment or other students to play and or socialize with. The students sit in their wheelchairs alone watching the other children play soccer on a field that is not accessible or safe for them to maneuver their wheelchairs, children building castles, holes, imagining that they are going to China or in the sandbox that has borders that allow able-bodied children in and children in wheelchairs out. I see children playing on the playscapes that has slides and or fireman poles, but no ramps for children in wheelchairs and opportunities to explore, imagine or play.
Children with disabilities are often marginalized and excluded on school playgrounds often because their abilities are unappreciated. I believe one of the effective ways to encourage such a change is to provide opportunities for them to self-advocate and be included in the decision-making process by providing the tools and resources necessary to express their wants and needs.
I held a learning circle including the children I support to provide them a means to express what they felt about the school playground. The students expressed they felt isolated, frustrated, mad, unvalued and sad. Expressed the basketball nets were too high and were afraid of getting hit in the head by a ball. They wanted to play in the sand with their peers, however because the sandbox is sunken in the ground, has high borders, and not entirely accessible, the students with physical disabilities are unable to gain access to the sandbox. In other instances, students were unsure of what to do when they wanted to play soccer because they felt they couldn’t ask their friends to stay with them to play. They didn’t want to prevent their peers from doing things they were able to do such as playing in the sandbox, practicing gymnastics on the grass or playing on the playscape. It also assisted in deciding what equipment the children felt was missing from the playground. The students shared that the most accessible equipment such as an elevated sand table and adjustable basketball net to accommodate their wheelchairs would be beneficial. The students expressed they felt comfortable playing with other students in the Intensive Support Program because they didn’t feel they would be judged. They didn’t want to leave other students alone without anyone to play with and because sometimes other students didn’t understand them or have the patience to wait for them to respond whether it is throwing the ball or responding to a question. I have also found that because of differing maturity levels from that of their grade peers they do not have much in common. For instance; one student is 14 years old, and her favourite television shows are not age or maturity appropriate for younger children. The other children watch television shows that contain content that some other students do not understand or watch. Having an opportunity to engage in a circle dialogue with the students, allowed me to hear the accounts first- the hand of the students’ experiences firsthand. It also allowed the students to express their feelings and suggestions regarding what they want and need to be changed, so they feel more comfortable and inclusive with their peers. How those changes and express can be included in the design stage of the Courtyard Revitalization Project is vital and allowed the student an opportunity for them to feel comfortable in a situation and which other students may have felt the same way.
I did not include children in the photographs that illustrate barriers children with disabilities face on the playgrounds. I wanted the main focus to be on the barrier not on the child.
I was able to gain funding from the parent council and the principal to purchase an elevated sand table, as well as an adjustable basketball goal. It has been very exciting for both the students and I; the elevated sand table is in the process of being installed. The children love playing with the adjustable basketball goal. The students with the class I support are beginning to enjoy the school playground and are beginning to feel included within the of the school community. Currently, I am still an active member of the in the school Playground Revitalization Project steering committee. The revitalization project is going well. We have created our designs and are in the process of working with the board in finalizing our design and develop strategies on how to gain extra funding. Although this began as my DST 99 final project, I am in the long haul!!